I am loved and free

Together we love and make life. We flow together while whispering.

Our daughter and sister, Eisha, was the canvas filled with life flowing water. We, her family and loved ones, were the painters that helped paint her life as she gave us color and vibrancy.

Eisha’s love was and still is abundantly overflowing, that gave substance to anything it encountered. Though she had her own life struggles and limitations, the way she chose to view and see life, was one of a kind – one that makes everyone question their own. 

Where one might see tears, she saw joy with laughter. She literally laughed in the face of hardships (needles, nurses, procedures, medical interventions, 100% dependency on others, non-mobile, non-verbal, partial vision and hearing loss, profound developmental delays, inability to eat by mouth, and more). Though tears flowed from her eyes because of the pain and hardships, she fought to enjoy life. She laughed because she would say, “You think that is pain? That is hardship? Okay… ‘Oh, you do not know hardships. Yet, life is worth living and fighting for.” 

Where one might see she had little to contribute, she willingly gave, like a life-giving river – she gave to her loved ones what she had – she gave her Make-A-Wish to build an accessible playground for her peers with special needs at her school. 

Eisha was born with Trisomy 13, Patau Syndrome - a chromosome condition associated with severe intellectual disability and physical abnormalities in many parts of the body. The majority with Trisomy 13, will miscarry and never make it to birth. It occurs in 1 out of 10,000 newborns. Due to the presence of life-threatening medical problems, many infants with Trisomy 13 pass away before their first few days. Only 5 to 10 percent of children with this condition live past their first year. Eisha lived until she was 15 years old! She is our miracle just as medical professionals have no words to explain but to support her to live her best quality life.